We're hoping that he can be discharged in about a week. Sometimes these babies take a while learning to feed by mouth (he's been getting milk by his nasal gastric tube), we'll be introducing that this week, and he's still being weened off some of the meds and the oxygen support.
Thanks to the MD.s and the RN's, to our friends who cooked for us and to the pray-ers, and to the Quakers who volunteer at the Ronald McDonald room and to the people who donated Christmas presents to the kids in the PICU. And to the plowman who cleared our driveway. Glory to God for hope in tough times.
Jack, Santa & his nurse Deb on Christmas!
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Wonderful to see the grandmothers holding Jack. Happy to hear he is holding his own, and hoping he learns to eat on his own quickly. If he is anything like his dad, he will! Hugs to you all!
ReplyDeleteIs his breathing tube back in?
ReplyDeleteThe intubation tube is out. They are using the nasal canula on him like it's CPAP. The surgery didn't rebuild his Left ventricle, it just rerouted his blood flow so that his right ventricle can do all of the work. But those changes seem to put a bit more stress on his lungs .
ReplyDeleteHe looks fabulous! So stinkin' cute!!!!! The feeding thing will come with time - just keep at it. The nurses are so awesome trying to make their rooms feel "homey". Aedan was cranky on Christmas too with his cold, so it must have been going around.
ReplyDelete:-) I have always said that these kids have old souls and are wise beyond their years - you look in their eyes and they clearly know more about the world than their young age would give them. Everyone's starting to feel a little better here so if you guys are still in this coming weekend we'll try to make it over. We'll check in with you by email. Happy New Year to your family - may 2013 be a little less stressful than 2012!
Jen Conway