Update from home

Jack has been so very happy to be home! He's had some fevers but those have gone away. His post op check up with cardiology and Dr Devejian went awesome!! Besides his sats still being on the low side, he is doing great. His heart function is excellent! If he's still low they will eventually do a cath, but that wouldn't be for quite awhile. 

I'll try to post some pictures of him tomorrow, his scar looks so good. It's hard to believe he can heal so fast. 

This was such a difficult few weeks. We are always thanking the Lord that he got us through it quickly. We also thank Him for such amazing support from all of you. We all needed your prayers so much during this time. 

Thank you!!!

~Rebekah

Home!!!

He's home!!!! Jack has been happy and energetic. He's thrilled to be able to play outside!

His Sats are in the mid 80s. Not quite where they should be, but we've been sent home to recover.

We have follow up appointments next week. They're hopefully his Sats will rise as he recovers more.

We will try to post more later.

Outside

We got to go outside today!

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Thursday

Just chilling with my iPad and olives!

No more fever, praise the Lord!

Update

Jack's final chest tube was removed yesterday! This would normally be about the time when we could be going home. Except Jack's sats are still in the low 80s/upper 90's and they don't know why. :( Initially they were thinking it was a respiratory problem, but the xrays are clear. Dr Devejian was hoping that by removing the last tube Jack would be much more comfortable and breathe deeper. He certainly is more comfortable and is very active, but his sats still haven't improved. There is talk of doing a cath to see what is going on with his heart. All indications on the echo from Monday were that everything was perfect.

On another note, Jack has decided he is so fed up with being there that he vomits every time we try to give him oral medication. And he has recently spiked a fever. Needless to say, we're getting pretty fed up with being in the hospital, and we are all ready to go home!

Please pray that Jack's 02 sats rise to where they should be (90-95) without any further medical intervention! And that his temperature last night would be a quickly passing thing.

Thank you so much.

~Rebekah

Tuesday

He's been getting perkier every day! His Sats are still a little low but overall he's doing great!

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Playing

Jack has been on a few big walks today and finally slept for a few hours straight! His Sats are a little low but hopefully more walking will fix that.

He loves the new toys he has been given!
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Sunday

Here's a quick picture from today. Doing okay, fairly cranky at times.

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Paw patrol!

Jack's favorite hospital activity is watching paw patrol!

He had a good night and a pretty decent morning too!

Friday

Overall today was a good day. One chest tube and neck Iv removed. He went for a big walk. His Sats have been good and the doctors are all happy with his progress.
As always we thank you for your prayers! He needs a good night sleep.

Friday

Jack had a good night. He was able to sleep soundly for a few hours at a time! Two of his three chest tubes are draining less which is great. We are hopeful that his neck Iv will be removed today and maybe even one of his tubes. There is also discussion of changing his pain medications. Please pray for wisdom for his medical staff so that Jack had heal as quickly and painlessly as possible.

On another note, please pray for safe travels for our daughters. They are headed down to spend a week in sunny Florida with Alex and Karen! They have been so excited for this, even though it was hard for then to leave their brother.

Thank you!

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Morning update

Jack had a decent night. He isn't sleeping got too long and when he's awake he's uncomfortable and confused. They're staying on top of his pain meds. His vitals are perfect, with 02 Sats around 90. Please pray for a restful day. He's going to be up and walking later and hopefully can have some juice.
Rebekah

Extubated

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Out of surgery

We just spoke with Dr Devejian. Jack did great! Everything went smoothly!! We should be able to see him in a couple hours. Hopefully he can be quickly extubated. Please pray for a peaceful night and minimal pain.
Thank you!
Josh and Rebekah

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April 8th

We just received a call from the surgeon's office. Jack's surgery date has been changed to Wednesday, April 8th. Please update your calendars again.
Thanks,
Josh & Rebekah